It’s been a long week …


I’m referring to the holiday my wife is on at the moment. As I’ve not posted for some time, I’ll get you up to speed. Around the middle of April, K****s sister and daughter, returned from a week away in Gran Canaria. She returned with an offer that K*** should join them on their next trip. There was much discussion about this, with me having a lot of misgivings about the whole thing. Firstly, it’s a ‘beach, bar and pool type of holiday, which I understood was not the type of holiday K*** enjoyed. Secondly there was R*** to consider. How would he react, coming home from respite to find his mother not at home, and not going to be home for another 4 days. Then there is the cost. K*** tells me that it’s a ‘one-off’, but isn’t that waste of all the money it cost for a new passport? And what about all the new clothes … more expense. Anyway, she is back on Tuesday. R*** and me will both be pleased, and as I say, it’s been a long week. I had a list of jobs that I wanted to get done, which I managed to do in between the rain and the wind we had here. I suppose the worst part of the experience is the lack of conversation. I went to the pub a couple of evenings, but there is only so much you can chat about with people that you don’t really know. It will be nice to get back to what we call normality.

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I’ve been a bit lazy with this blog over the past couple of months. To be honest, I’ve not really had much I wanted to say. I wanted to stay clear of politics as that is all that people have been talking about for the past month. I know from past experience, that it is one way to ‘lose friends and annoy people. That is something I can do without any external help, thank you very much.

I tend to update this blog in the late evening. I thought, that this retirement (early) would give me lots more time to do things like this blog, but it doesn’t seem to have worked out that way. It still late at night, when K*** and R*** have gone to bed, that I think ”I must do a blog post”, and then I get distracted and end up not doing anything. I was going to look for a part-time job. That’s not happened. I signed up with a recruitment agency, but the jobs they have come up with are never appropriate. I promised myself that I would do more writing, but I don’t seem to have had any ideas that I could write about. I have done a fair bit of knitting though. A three beanie hats, five headbands, a pair of wrist warmers, a couple of scarves and I’m a quarter of the way through a sleeveless jumper. So I’ve not been sitting on my hands, so to speak.

I shall stop now as I don’t want to start rambling on about anything. I think I shall make a mental note to think about updating this effort at least once a week. I’ll put a note in my diary. See if that makes a difference!

It had to improve …


It started when I got home Friday afternoon. I left early as K*** was taking her mother to an appointment and I needed to be home in time for R*** coming home. He’d been on respite since Tuesday and has been getting home the previous week at about16:40. So I needed to ensure that I was home in good time to allow for problems on the motorway.

The guy who had done our rendering was supposed to have been to clear up, but he can’t have done much because it was hardly noticeable. What I did see though was that he had dumped some of the rubble he had cleared in the garden waste bin. Working for the Councils Waste Management, I know that he should not have done that and that we could have our garden waste collection stopped. I managed to get most of it out and into an old compost bag which I can get rid of later.

So back to being home early for R***. What a waste of time! It was 17:40 when the taxi finally dropped him off with the drivers excuse that there had been a ‘serious accident at the roundabout.’ Now this was a blatant lie. When I got home, I checked the travel details on the BBC website, which showed that traffic on the motorway was running fine with no delays in our area. I continued to check as it can give an indication of the time that R*** would arrive home. There were no issues at all. It was a lie. K*** is going to check what time he was picked up, and she will take it from there.

The thing with R*** is that when his routine is compromised, the effect comes out in his behaviour. It’s one part of his Autistic condition that we always try to prepare for. Doesn’t always work though. He started to get a bit tetchy at around 21:00, shouting and playing his computer at full volume. We gave him some medication to settle him, which seemed to work. He became more his usual self. Went off to bed at the usual time and it was all as it should be.

Then disaster! At about 01:00 we heard him shouting, not too loudly, but loud enough to realise he was not dreaming. K*** went to see him and called me to look at his computer. Now I think I have mentioned this before, but R*** sleeps with both his TV and computer on. His TV is on a specific channel and his computer has some YouTube videos on a loop. Both are very quiet, but he always has them on. What happened was that his computer was not working. It was completely dead with no power at all. I checked all the other power connections and they were working okay. So I changed the fuse in the plug for the computer and tried again. Nothing! Then without warning, his computer kicked back into life. All happy again. I could only surmise that the computer battery had completely discharged. It was either the fuse or more likely that the power cable had come loose from the machine.

By this time though R*** had gone into partial melt-down and K*** had given him some of his PRN medication. This really calms him down, but sometimes effects his sleep pattern. It was about 04:00 that he finally settled to sleep. A long night for all of us.

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Now after ‘The Curious Incident of Laptop in the Night’ to paraphrase, I began to worry about what would happen if his computer had not restarted and was broken. He does have another laptop that he takes when goes on respite, but that is for there. He just would not accept that he could use it at home. I began to think that my ‘old’ laptop could be upgraded to Windows 10. I bought a new one when Microsoft started to push Win 10 and reduced the mainstream support for Win 7. I did not want to upgrade my machine as there was some core software that I use, that was reported not to work in Win 10.

So, I bit the bullet and decided to upgrade the old machine to Win 10 and use it as an emergency machine. I knew it as going to take a couple of hours, but what I was not prepared for was the actual time it would take. It was 10:30 when I clicked the ‘Upgrade’ button and I sat for the next hour watching what was happening. I had been told that there was very user input, and that was correct. It finally finished installing leaving me with a workable system, just under eight and a half hours later!

I am now in the process of un-installing all the software that nobody would actually use. Could be another long day.

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A quick update on my early retirement bid. On the 7th, I emailed the pension company asking for a copy of my 2015/16 pension statement. The reply I got back was short and sweet telling me that the ‘… statements were being sent out everyday, in alphabetical order and I should hear in a couple of months …’ I was going to wait until Saturday and write a more detailed email to point out why I needed the statement now. So it came as a bit of a surprise when the post came on Saturday morning to find my 2015/16 pension statement had been sent. Date of printing … 7th June. Coincidence?

Worrying day … not going too well …


It was never going to be a good start to the day. R*** has had an infected thumb for a couple of days now. K*** was worried that it was getting worse and thought he would need need to see the doctor. Not so bad I hear you say, but here comes the crunch. Today was the day the rendering was to be started and was also the day we were going away for couple of days. Add to that, R*** going on respite for four nights, made for a nightmare of a start.

Still it all now seems to be getting better. R*** got off okay (taxi manage to eventually pick him up). The plasterer started and was getting on quite well. We got off for our break after a not too long delay and found the place we were looking for with no problem.

Posting might be an issue at this cottage. There is wi-fi and it is quite good, but there is no phone signal (like being back in the 1980’s) and I’m missing it already.

Life changer – “T” minus 10 (again)


I have a new date for my operation. This time should be a definite. They cannot bump me again. Can they? Well apparently they can. The number of ICU beds remains the same so effectively the same could happen. However, saying that, I do think that it might happen this time. Just a feeling.

The changes to R***’s respite pattern were not too drastic. K*** decided to let go away this weekend, as planned as it was thought it would be a good idea to start to get him used to being away at weekends. He appeared to go off without any problems on Friday, so we wait and see.

Work has been understanding about the whole issue of the cancellation. I now also get the impression that the so called ‘other part’ of the team, know that I’m going into hospital. One or two of them seemed to be quite interested in what happened. We shall see how that progresses.

 

 

 

 

Life changer “T” – ‘Fu*k Knows!!!!!’


This is going to get a bit political and may be a little sweary, so be warned!!

Today was going to be the first day of a new life. Today I felt the true effect of this Governments National Health Service decimation! My mitral valve repair/replacement operation was ‘bumped’.

Everything was in place. Respite for R*** had been fixed and the process of getting him used to the idea that his Dad was going into hospital had begun. K***s work arrangements had been sorted. My work arrangements were in place and S**** was on call if needed. K*** had taken me to the hospital. We had had a ‘light lunch’ as advised. I was on the ward and had had my chest X-ray. I had unpacked my bags and even had my slippers on when the surgeon arrived on the ward to tell me the news. He seemed to be quite annoyed that they would normally do four heart operations a day and are now down to five or so a week. It seems, that because of the cut backs imposed by this bunch of c**ts, (sweary bit) who masquerade as a Government, there are insufficient ICU beds available! Just let that sink in …… not enough intensive care unit beds in an NHS hospital because of Government cuts!!!

K*** was quite distraught. It has not been easy for her during the build up to this, what with the planning for R*** and everything else, and for it all to come crashing down was very hard. At the back of my mind was the words that the nurse said last Tuesday, when she said that “…… it could be cancelled ….. even on the day….” How those words come back to mind now.

So where are we now? Well for a start, I have to go to work tomorrow!! K*** has to spend a lot of time trying to realign R***’s care/respite plan, whilst trying to keep her emotions in check. That is not easy, as she had only just got her head around the fact that I was having this done now.

So now I have to ask the question, who is to blame? Here come the political bit! At first I blamed Osborne, that weasely-eyed ‘Hoo Ray Henry’ of a Chancellor. But then I thought, no he’s only doing what his leader tells him. So it’s Cameron’s fault!! Or is it? More thoughts later, and I come to the conclusion that actual fault, for all the problems that people, like me are going through, lies at the feet of one person. CLEGG!! The turncoat. The guy that presented himself to the country as the only one that could keep the Torys in check. How easily we were fooled. However, in the words of The Who … “We Won’t Get Fooled Again!!!”

It looking like it may happen sometime, week beginning the 23rd June. I have no idea now whether I am counting down or up.

Life changer – “T” minus 4


Only 4 more nights until the op. I should probably call it ‘a procedure’ as it sounds more professional. At least, that’s what they call this kind of thing on TV. I suppose calling it a procedure kind of leads you to think that this is routine. Of course, it is routine by the very nature that these experts do the same stuff everyday but that no way detracts from the complexity of the work this surgeon and his team will have to perform.

A family day yesterday for my father-in-laws 80th birthday. One of K***’s uncles was there and he has been through the very same thing. It was interesting to hear first hand from someone who has had the ‘procedure’.

What is strange, and I’m not sure how to take it, is the number of people that have wished me ‘good luck’. I hope I don’t have to rely on luck!! They also say things like ‘I’m sure it will be fine’ and ‘hope everything goes okay’. It must be difficult to find something to say that doesn’t sound like I need a four leafed clover at my bedside. I almost kind of liked what my GP said, after he had diagnosed my Pulmonary Congestion. His comment as he shook my hand was “See you on the flip-side!”

Saw my mother on Thursday. She seems to be getting a little confused I think, as she asked me if I had had my operation. I explained when it was and what was going to happen, but she is either blanking it out or she genuinely does not get it. As for the rest of my side of the family, not heard a peep from any of them since the message I posted to them all. It is a sad state of affairs when people outside your direct family are more interested than they are. But I’m not going to fret over it. I’ve enough to worry about (excluding this) at work and at home. The situation at work seems to change on a daily basis and I can see our new boss, G***** getting a little annoyed about it all. This is about our latest office move, of which I may blog about in another post . Then there is the worry about R***. How will he take it when he realises that I’m not there for a whole week which has never happened before, and that his recite has increased. He does not take kindly to change and it has been made slightly more difficult with S**** moving out. Just glad that K*** has not told the community nurse that S**** is not at home. Heaven knows what she would have said/done if she knew. With all this going on around me, the small matter of heart surgery pales a little into insignificance somewhat.

This is probably going to be the last post on the subject until the deed has been done. So in the words of my GP …..”See you on the flip-side….”

Getting back to normal (or as normal as it gets)


     After surviving Christmas, the next task was to get through New Years Eve. We did!! R*** was on respite, as he struggles with the NYE fireworks. It’s not the fireworks themselves that are the problem, it’s the randomness of the explosions coupled with the unexpectedness, if that’s the word I’m looking for. So he was away for two nights and came back on Thursday evening. Sounds like he had a successful time, there were no reported issues. S**** and his girlfriend A**** and another friend from his university days, went to a party. They were all staying over, so that left me and K*** ‘home alone’ as they say. So what did we do… go to the pub? go to a party? go into town??? Nope, we watched the television. Well that sounds a bit simplistic, but it was a nice evening. We had a nice meal, some nice wine and spent the evening relaxing.

     Then it was back to work on the 2nd. That was a more stressful day than the whole of Christmas and New Year together. It appears now, that the work review that we are going through is changing somewhat. We were originally told, that our service would be “picked up and dropped into the new service” and that “new opportunities would present themselves.” We are now told that we will be “slotted in” but will have to push ourselves forward and sort of make a case for our existence. So that sounds interesting! We have also been told, that we need to make a brief ‘pitch’ to promote each one of us. My direct manager, S**** was pushing the idea, that this was going to be some sort of ‘presentation’ and that I should use Microsoft PowerPoint to do it. Ten minutes each was the suggested time frame for each one of us. The fact that this meeting was only booked for an hour with eight people to speak did not seem to matter. It is now down to a two minute talk about who we are, what we do, where we come from and where do we want to go. I am not looking forward to it at all. I’m not one of those people that enjoys self promotion. I’m a background person that just want to get on with the job in hand. I’ve been told that I should always be looking for better opportunities. Sorry, that’s not for me. So we will see what happens at this meeting on Friday.

     I now have a Tesco ‘hudl’. th I mentioned it to K*** just after Christmas, that I was going to see if they were reduced in the sales. I’m not a fan of Apple products, so the Ipad or Ipad Mini were not something I could ever see me using, but thought it might be useful to have some form of tablet computer.She got a bit annoyed with me as she did not know that I wanted one. We looked on the Tesco website, and she bought me a red one. We shall see how useful it proves to be. With it being an Android device, I am quite used to the operating system, which is the same as my smartphone. I just need to be careful that it does not turn into a smartphone without the telephone part.

     My attempt at writing a story based on letters from the main character is coming along, albeit slowly. I have a good idea where I am taking it, but I’m just not sure whether it is moving along to fast or even too slow. I decided to write this back in October 2013 and had the idea that each of the letters is a chapter of the story. I’m now up to chapter six, and this is where my doubts seem to be creeping in. I will finish it though, but not sure when.